Basic Information

What is HNPP?

Other names for HNPP

Varieties of HNPP

HNPP Symptoms

The Genetics of HNPP

Number of People affected

Getting Diagnosed

The Genetic Test


Interviews (published by CMTI)

Misc articles published (by CMTI)

Children and hnpp

Tidbits of information

HNPP Articles and Other Links of Interest

Other Organizations supporting HNPP

Q and A/FAQs

Treatment and Prevention

Prevention is key

Conservative management of HNPP

Toxic drug List

Surgery and HNPP

Letter to Surgical Team

Helpful hints by and for people with HNPP

People Say this works for them

Others with HNPP

Join HNPP e-mail support group

Life with HNPP

Survey of individuals with HNPP

Personal Stories (includes articles published by CMTI)

Musings from our philosophical EdM of NH

When HNNP is more than just a nuisance

Significant HNPP Symptoms


Learning to Pace Activity

Adapting the house, etc

Equipment funding

Physicians, researchers and studies

Doctors who treat HNPP


Research Studies

Hodgepodge of Information

HNPP in the news

Disability and ADA

People First language

Tax Deductions


About the site


Contact Maureen