There is no cure for HNPP. But that does not mean that some symptoms cannot be treated. It can be very difficult to find physicians who have ever heard of HNPP. If you and your doctor feel you need to see a physician, who as experience in HNPP, you will probably need to look to the larger Universities. This may very well mean driving for hours to see a doctor.
If driving for hours is not feasible, then work with your family doctor and learn about HNPP together.
The following is a list of physicians who are expereinced with HNPP and can help with patient education and treating symptoms, as they arise. This list only contains names of doctors who have been contacted and agreed to let their names be published here. The list is woefully incomplete.
If you are a physician and would like to have your name added to the list or if you are a person with HNPP and know of a physician to add, please contact me.Maureen Horton
This list is in alphabetical order by States/Provinces and then by last name
For California Doctors treating HNPP, contact you nearlest MDA clinic http://www.mdausa.org/local/mdalocal_ca.cfm. HNPP is now considered a subtype of CMT, which is covered by MDA.
KansasDavid S. Saperstein, M.D. Assistant Professor Department of Neurology The University of Kansas Medical Center 3901 Rainbow Blvd, 1005B Wescoe Kansas City, KS 66160-7314 PH (913) 588-0619 FAX (913) 588-0618 E-mail email@example.com
MichiganRichard Lewis Department of Neurology Wayne Sate U. Schoolof Medicine UHC 6E 420i St. Antoine Detroit, MI 48201 Phone (313) 577-1245 e-mail: firstname.lastname@example.org Michael Shy Department of Neurology Wayne Sate U. Schoolof Medicine UHC 6E 420i St. Antoine Detroit, MI 48201
MinnesotaGareth Parry, MD FACP University of Minnesota Minneapolis, MN e-mail : Parry001@maroon.tc.unm.edu
Dr. Jim Sweeney D.C Hosenfeld Chiropractic 312 Prosperity Drive, Suite 101 Knoxville, Tn 37923 865-691-3155 865-694-8093 fax Dr Sweeney wrote in in 9/07 that thery were seeing their first patient with HNPP . Thy are a rehabilitation center that focuses on conservative management of many chronic conditions. We are also a multidisciplinary clinic."
TexasYadollah Harati, MD FACP Professor, Director Muscle and Nerve Pathology Baylor College of Medicine 6550 Fannen #1800 Houston, Texas 77030 Phone: (713) 798-5993 Fax: (713) 798-5030 e-mail: email@example.com
Canada - Alberta
Canada - British Columbia
Canada - QuebecJohn D. Stewart Professor, Dept. of Neurology & Neurosurgery Montreal Neurological Hospital and McGill University 3801 University Street, Room 365 Montreal QC, H3A 2B4 Phone (514) 398-8980 Fax: (514) 398-1285 E-mail: firstname.lastname@example.org
Canada - Saskatchewan
Switzerland,GenevaDr Michael Morris FAMH Specialist in Medical Genetics Molecular Diagnostic Laboratory Geneva University Hospitals, Switzerland email@example.com. In our service we offer both genetic testing and genetic counselling, for HNPP as well as for many other genetic diseases. You may be interested to know that, since we started offering testing in 1996, we have performed about 150 tests for HNPP, and have identified and follow 19 families in our area. (3/04)
Last updated: 12/04